Guest Author: Lois Janish, Lyme Warrior and Caregiver
I’m going to post my son’s story for him as he has said it’s important to do to help sick children and their parents cope and hope. I hope you can share this and that it helps others. This is my boy’s heart.
Evan has congenital Lyme. It was passed to him in utero from me. I was undiagnosed for 23 years. My story is on FB as well but not the focus here. The point in mentioning it is just to address the transmission. The CDC has controversial info on this. They are saying it’s not probable mothers can pass it on yet also stating that mothers with Lyme should take antibiotics while pregnant so they do not pass it to their newborns. Hmmmmm. So which is it? Is it impossible to pass to newborns or are we supposed to take doxycycline so we don’t pass it to them? Most importantly let’s assume their most highlighted info is correct…we are all supposed to take doxycycline when we get pregnant if we have Lyme.
What happened to all of us pregnant mothers who didn’t know we had Lyme when we had our children?
I’ll tell you. Right here. Right now. Continue reading “My Son’s Story: Part 2 of My Lyme Battle”
Guest Author: Becky Anne Michael, Caregiver
It had been the perfect night. As I wrapped up my fifth year of teaching, I went out to dinner at a local French restaurant with a group of students I had taught for four consecutive years. We dressed up, took our time in traditional French style, ate escargot, reminisced, talked about the seniors’ plans, and had the perfect night. Were my life a movie about the struggles and triumphs of becoming a teacher, it would have been the quintessential final scene, representing how far I had come as a teacher and how poised I was to live happily ever after in teacherland.
After our goodbyes, I got in the car and called A to say I was on my way home. He asked if I could stop by the grocery store to pick up a few things and I was happy to oblige. It was rather late, so I didn’t have a lot of time before the store closed. I drove over and started gathering items. However, as I grabbed a can of black beans, I noticed something. A smell. Perfume. There wasn’t anyone around me, so it wasn’t a person. I sniffed my hands. It was on my hands. I don’t wear perfume. I sniffed the handle of the shopping cart. There it was. The culprit. And if it was on the cart and then on my hands, it was surely on everything I had already gotten.
Already all too familiar with how intensely and easily perfume transfers from one surface to another, I knew what to do. I grabbed a bunch of plastic bags from the produce isle and made make-shift gloves. I replaced everything that was in my cart and continued shopping with bag-gloves as a barrier between the fragrance and the items I would bring home to my chronically-ill, hyper-sensitive partner. I finished up, paid for my items, and started bagging them (not the easiest thing, when you are using bags as gloves). As I did my bagging, I checked the items. In spite of my best attempt to keep the fragrance off of the items, it was on them. So, I called A and explained the situation. We decided that the only thing to do was for me to return everything. Because fragrance is so difficult to get off of one’s skin (and the fact that it was so late), there was no re-doing it. I just had to abandon my mission and go home empty-handed. Well, hands full of fragrance, but free of groceries. Continue reading “Yes, I Smell My Shopping Carts”
Guest Author: Holly Roesing
I originally grew up in Connecticut – however, to my knowledge I was never bitten by a tick. I lived in the Northwest corner/Litchfield County for 30 years.
My husband and I decided to move to South Carolina after 9/11. In 2005, I was bitten by a tick, here, while on a 3 Day Outdoor Classroom camping trip with the 5th Graders at my school. The camp was located on Lake Marion, SC. I located a tiny speck on my stomach while showering and I knew I did not have a mole or beauty mark there. The speck was flush with my skin and it took everything I had to dig it out without taking my skin with it. When I finally removed it, I placed it on the sink and it started to walk. I had gotten the whole tick out. I immediately placed it in one of my Ziploc bags.
I knew enough to get the tick tested, but didn’t really know the symptoms. I sent the tick to my mother in Connecticut so she could drop it off at the Health Department. I ignored a few early onset symptoms like joint pain- and attributed it to doing too much (i.e., coaching/playing softball/being active). I did NOT get a bullseye rash.
Approximately 8-10 weeks later, the State of Connecticut mailed out the letter stating that my tick was a “Lone Star Tick” and it had tested positive for Lyme. I took that letter to a local doctor who didn’t know much about Lyme, but she put me on a couple weeks of Doxycycline. Continue reading “My Lyme – My Voice”
Guest Author: Jacob Stehlar (pictured in the middle with his brothers)
My name is Jacob. I’m 24 and have had the clinical diagnosis of Chronic Lyme Disease.
Here briefly is my story of diagnosis.
Overview of Diagnosis
The past year has been hell for me. I’ve had to quit school, I can’t work and everyday I deal with sickness. I was on the drug Cymbalta up until summer 2015. I was having urinary problems, heart palpitations, forgetfulness, and slight dyslexia on the drug and it was getting worse. I had been tossed around anti-depressants since I was 11, with none of them helping much until I tried Cymbalta. It helped for a few years. Then I started to have less and less energy to do things that I enjoyed, such as wrestling, football, and weight lifting. But I just stuck with it even though I didn’t feel good. This past summer I weaned off my medicine under my doctor. It was hell, I felt very angry, sad, racing thoughts, and so many other things. But then I started to feel more human, and I started to laugh and enjoy things more even though I had low energy. I started feeling more human and intune with myself, because for so long the anti-depressant drug was making me become apathetic and numb. I still was getting ill though. I had terrible brain fog. And my dyslexia symptoms were getting worse, where I couldn’t even read which used to be my past time. I gave up and tried starting Cymbalta again in January so I could start college again. I had been working on my bachelor’s degree in environmental science. It made me so nauseous I was vomiting for 2 days. So I stopped. This whole time I had been researching natural depression cures, and was trying lots of different things with not much success. I finally saw a naturopathic doctor in Late February. I told her all my symptoms, and I was surprised she wanted to test me for Lyme disease. I always thought with Lyme you get a rash, go to the doctor and get antibiotics for 2-4 weeks. That is not the case, only 40-50% actually show signs of the rash. And most tests done for Lyme are not very accurate. I started her protocol and did feel weaker during the detox time, and detoxing made my depression worse. I haven’t stuck to the protocol she gave me to a T. Especially with diet which is the most important thing. Because partly, I didn’t fully believe her, with depression in my family I thought it was just that. Which is what I’ve been told all my life.
Continue reading “Jacob’s Lyme Story and Fundraiser”
Guest Author: Lois Janish
I’ve decided to share my story you all are asking about. I’m going to guess it will be a read that takes almost a full cup of coffee but since I never pre-write anything (even my music and lyrics come in one sitting) I have no idea. Many who don’t know me really well will choose to skip it. Others who have blessed me by coming into my life somewhere over the past 24 years have bits of a story and more than ever are asking for the whole picture and how I’m to this miraculous point of recovering. As my story unfolds to my diagnosis and treatment things get pretty interesting 😉 If you or anyone suffers from Lyme or unexplained illness at least skip down to the bottom and read about the treatment.
So I begin….. Continue reading “Lois’ Lyme Story: From Struggle to Recovery”
Author: Sairy Franks
You are needed! The Oak in the Acorn strives to amplify the voices of those with Lyme and other tick-borne illnesses, as well as amplifying the voices of our caregivers. I have been sick with Lyme Disease and co-infections for 16 years and have been writing about my experiences on this site and other places online. My intent has always been to raise awareness and compassion for people with chronic illness and their support people. However, after meeting and remaining connected to many people with Lyme throughout the years, I understand that I am just one person, and there are many perspectives and stories that go untold as I share only about my experience.
My hope is that those of you with chronic illness and those of you supporting us will submit your stories, experiences, perspectives, hopes, triumphs, tribulations, losses, beauty, and anything you feel drawn to share in a way that is healing to you. This could be in any format – words, pictures, artwork, music, videos, the list goes on. It can be your own personal story or also an article you write on any topic pertaining to chronic illness or Lyme. I know we all have a lot on our plates, so your submissions could even be old FB posts, journal entries, etc. If you’d like to write an “about the author” section for me to add to your article and/or a personal photo of you, that would be great! It’s totally up to you though.
Additional information I’d love to include for those who are interested:
- If there are fundraising efforts for you feel free to send me your story and info about how to donate…I will be happy to share that here!
- If you have art for sale, write something up about it and send it my way! I would love to post about it and direct more people to support you! Include any websites or information necessary so people know how to find your work.
Submissions or questions can be sent to firstname.lastname@example.org.
Because so many of us are housebound, we need a safe place to share our voices and be vulnerable with the confidence that our truths will be met with love. I would love for this to be a community space to celebrate and mourn, as well as be a resource to people who want to show up for folks with chronic illness and our caregivers both in times of struggle and celebration, in ways that heal and support rather than harm or alienate. This is not only an opportunity for people who have been unaffected by chronic illness to learn, but for all of us to learn how to better support one another. All submissions are deeply appreciated.